More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...
"Monumental" is how Ashley E. Webb, MD Assistant Professor, Department of Pediatrics, Division of Child & Adolescent Neurology Neuromuscular Program Director, UTHealth, University of Texas Health ...
The BBC's Ben Morris describes living with spinal muscular atrophy, as former Little Mix star Jesy Nelson reveals her twins ...
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Jesy Nelson Reveals Twins' Rare Diagnosis—What Parents Need To Know About Spinal Muscular Atrophy
British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.
Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). It can ...
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Jesy Nelson’s Fiancé Zion Foster Shares Emotional Poem About Their 'Warrior' Daughters After Revealing Their Twins May Never Walk
Jesy Nelson’s fiancé Zion Foster is opening up about their baby daughters' spinal muscular atrophy diagnosis. The former ...
Ex-Little Mix singer Jesy Nelson met Wes Streeting in Parliament to demand newborn screening for spinal muscular atrophy (SMA ...
People with spinal muscle atrophy (SMA), an inherited neuromuscular disease, usually experience muscle weakness that impacts movement. New research suggests that electrical spinal cord stimulation ...
The mother of a four-year-old boy with a rare muscle disease says screening newborn babies for the condition could "save ...
A new qualitative participatory study explored how powered mobility (PM), in the form of modified ride-on cars, impacts children with spinal muscular atrophy type 1 (SMA1) and their families. Here are ...
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