What if I could show you what’s inside of me, on the outside? I live with an ultra rare condition called Maffucci syndrome, which causes cartilage-based bone tumors to grow all over my body, often in unpredictable and painful ways. These growths don’t just change how I move or how I feel, they shape the literal structure of my skeleton. For most of my life, these tumors have been invisible to others, tucked beneath my skin, only seen on CT scans, MRIs, or X-rays. This wearable art piece is my wa

Imagine thinking your opinion matters more than my quality of life?... Couldn't be me 🤪 Video Description: Samantha is seen wearing an all-white ensemble consisting of a dress with dangling pearls, a bedazzled white headband, @betseyjohnson earrings (PR), red lipstick, and gold pointed flats with a pink AFO brace. She's putting on different types of pain patches while talking to the camera. The text overlay reads "pain patches don't ruin your outfit, bb icons 💫🤍✨" #ChronicPainAwareness #Disab